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toggle navigation family life stages newly diagnosed nursery / pre school starting school changing school teenage and transition get involved stories share a story fundraising network information designated centre birmingham children's hospital shared care heart of england nhs foundation trust university hospitals coventry and warwickshire nhs trust the royal wolverhampton hospitals nhs trust birmingham city hospital and sandwell general wye valley trust hereford county hospital worcestershire acute hospitals nhs trust network developments network peer review network accountability structure network meetings faq news multidisciplinary team research current studies cystic fibrosis registry useful information useful links contact -- september : do you live with cystic fibrosis related diabetes? -- october : get your flu jab, ready to fight winter bugs -- november : have you had your annual review? -- december : enjoy those much needed extra calories during this festive time. -- january : need a hand completing your dla form? contact your family support worker today. -- february : planning ahead for your half term and easter break trips, why not visit merlin attractions? -- march : itchy eyes, running nose, are these symptoms of cf? or could it be hayfever -- april : the family support worker is on hand and ready for your call -- may : is the sun shining? add a new exercise and physio routine with an outdoor activity. -- may : remember to take your salt as temperatures rise. -- june : thinking about your summer holidays? -- july : starting or changing schools this september sending off the relevant dla forms each year can be a time consuming task. why not contact the family support worker to help make this task easier. mission statement our mission is to provide outstanding care for children and young people with cystic fibrosis. achieved by highly skilled multidisciplinary professionals, working together to deliver both individualised and family centred care. about cystic fibrosis cystic fibrosis (cf) is a life limiting inherited disease, affecting over 10,000 people in the uk. you can't catch or develop cystic fibrosis, it's something you're born with and most cases in the uk are now diagnosed soon after birth. if you or someone you know has been recently diagnosed with cystic fibrosis it can be overwhelming. cf is a complex disease and the types and severity of symptons can differ widely from person to person. breakthrough treatments have added years to the lives of people with cf. there is no cure for cf however there have been tremendous advancements in research and care with many people with cf being able to realise their dreams of attending college, pursuing careers, having meaningful relationships and children of their own. what is cystic fibrosis? cystic fibrosis is an inherited genetic disease caused by a faulty gene. these genes control the movement of salt and water in and out of your cells, resulting in the lungs and digestive system becoming clogged with mucus, making it hard to breathe and digest food. each of the thousands of genes in the body has 2 copies. for cf to occur, both copies of the cf gene (cftr) need to be faulty. each parent of a child with cf will have one faulty copy of the gene and one normal copy; having one normal copy is enough to stay healthy. each parent passes on one copy of each of their cf genes this means that there is a 1 in 4 chance of both faulty genes being passed on to their children. symptoms of cystic fibrosis can include a troublesome cough, chest infections, prolonged diarrhoea and poor weight gain. these symptoms are not unique to cystic fibrosis. cystic fibrosis is a complex disease that affects many different organs. there is currently no cure for cystic fibrosis but many treatments are available to manage it, including physiotherapy, exercise, medication and nutrition. more than half of the cystic fibrosis population in the uk will live past 41, and improved care and treatments mean that a baby born today is expected to live even longer. how does cystic fibrosis affect the lungs? people with cf are at greater risk of getting lung infections because of the thicker and stickier mucus which builds up in their lungs allowing germs to thrive and multiply. chest infections and a troublesome cough, caused mostly by bacteria are a serious and chronic problem for many people living with cf. a combination of physiotherapy and medication can help control chest infections and prevent the buildup of mucus that damages the lungs. to stay healthier and reduce the risk of cross infection people with cf should not meet or come into close contact with one another. it is common for people with cystic fibrosis to experience some problems with lung function, although not everyone is affected. how does it affect the digestive system? people with cf have to pay more attention to what they eat and how they digest food. in most people with cf the digestive tract works a little differently. cystic fibrosis affects the pancreas (see picture) because of the buildup of thick, sticky mucus that blocks the ducts, stopping digestive enzymes produced in the pancreas, from reaching the intestines to aid digestion. this can make it difficult for people with cf to grow normally and maintain a healthy weight supplements can help compensate for the lack of enzyme production by the pancreas, such as digestive enzymes that most people with cystic fibrosis take with each meal to help digest food what does the cf network do? the south and central west midlands cystic fibrosis network provide care for around 300 patients. the network comprises of 7 centres: designated specialist centre birmingham children’s hospital shared care centre’s new cross hospital heartlands hospital university hospital coventry worcestershire royal hospital sandwell general and birmingham city hospital hereford hospital help children understand cf life stages cf affects patients and families at different life stages. we have put together information & advice to help at every stage newly diagnosed nursery / pre school starting school changing school teenage and transition latest news gym equipment for children with cystic fibrosis in worcester 18th april 2018 children with cystic fibrosis benefit from local donations read more opening of new rare diseases unit at birmingham women's and children's hospital - waterfall house 5th april 2018 we're very proud to be home to the uk’s first rare diseases centre for children. the centre, located in waterfall house - our £37.5million clinical building, is due to open in 2018. the rare disease centre has been generously funded by donations to the birmingham children’s hospital charity’s star appeal, which raised £3.65million for the cause. we treat approximately 9,000 children and young people with more than 500 different rare diseases from across the uk and have 11 highly-specialised services. the centre means that we will be able to offer our rare disease children and young people highly coordinated multidisciplinary and multi-specialty rare disease clinics together with peer support and consistent access to research, information and treatment. we are proud to be redefining the best care from a 'one-size-fits-all' to a patient-centred approach in which we help children and families with rare diseases lead the best quality of life possible. read more the new parents information evening 2016 28th april 2016 thank you to parents and carers who came to the evening on monday 18th april. read more website launch 21st march 2016 we are pleased to announce the launch of the new website for the network. we hope this is a valuable resource for everyone. read more new service brings care closer to home 23rd october 2015 a new service at worcestershire acute hospitals nhs trust has been set up to provide care and treatment for children and young people living with cystic fibrosis. read more the new parents information evening 2015 1

URL analysis for wmscpcfn.nhs.uk

https://www.wmscpcfn.nhs.uk/changing-school
https://www.wmscpcfn.nhs.uk/news?title=cystic-fibrosis-specialist-nursing-team-win-at-pride-of-nursing-awards
https://www.wmscpcfn.nhs.uk/teenage-and-transition
https://www.wmscpcfn.nhs.uk/img_cms/gallery_images/586bab-8782_1000.jpg
https://www.wmscpcfn.nhs.uk/contact
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https://www.wmscpcfn.nhs.uk/img_cms/gallery_images/drmayadesaishauna_1000.jpg
https://www.wmscpcfn.nhs.uk/stories
https://www.wmscpcfn.nhs.uk/news?title=the-new-parents-information-evening-2015
https://www.wmscpcfn.nhs.uk/forgotten-password
https://www.wmscpcfn.nhs.uk/birmingham-childrens-hospital
https://www.wmscpcfn.nhs.uk/university-hospitals-coventry-and-warwickshire-nhs-trust
https://www.wmscpcfn.nhs.uk/img_cms/gallery_images/621bab-8817_1000.jpg
https://www.wmscpcfn.nhs.uk/nursery-pre-school
https://www.wmscpcfn.nhs.uk/bulletins#do-you-live-with-cystic-fibrosis-related-diabetes%3f
bch.nhs.uk
cysticfibrosis.org.uk
nhs.uk

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  SERVER uk.whois-servers.net

  ARGS nhs.uk

  PORT 43

  TYPE domain

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
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or hiding any or all of this notice and (C) exceeding query rate or volume
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  NAME nhs.uk

NSERVER

  NSA.NHS.UK 194.176.105.223

  NSB.NHS.UK 80.2.101.230

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